This week has been a big waiting game for us. The only thing that they can do for her lungs are let them open on her time, and progress has been very slow. Last time, they tried to force them open and the result was devastating so all we are really doing now is waiting. As I said before, Sunday was the first day that there seemed to be air in her right lung which was good news. For the next few days, we didn't see much of any change. In fact, they told us that they might even look a little worse. On Thursday, she was pretty unstable and they wondered if her pulmonary valve had clotted off again. Much to our relief, her valve was still wide open. Today, the x-ray shows that her left lung is starting to show signs of air in them. While the air is minimal, and her lungs are still collapsed and pretty stiff, at this point, anything that is not bad news is great news to us.
The highlights of the day come when we talk to her and she opens her eyes and moves her little fingers and toes. Every once in a while, she'll squeeze our finger and at that moment we could have no deeper love for her. We love our little girl more than we ever thought possible and continue to hope for the day we bring her home with us.
2 years ago
7 comments:
How good that must feel to get a sqeeze on the finder. How sweet she is.
So, I can't spell. I meant finger.
Baby Avery and your family are in our thoughts and prayers daily. My Avery loves being able to pray for your little Avery. That is so sweet that she sqeezes your finger. I am so glad that you get to have those precious moments with her. I am amazed at your strength and faith in each one of your posts. You are such a great example. We love you guys!
She sounds like such a sweetie!
Hang in there!
Thanks for the update. We're always thinking of you & praying for baby Avery.
Thanks for the update. How sweet that she is showing all that precious love in her squeezes and wiggles. WE love you guys
I stumbled upon your blog. Thank you for sharing these very private moments. Tears are streaming down my face. Very sweet and touching. God Bless baby Avery.
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